Sunday, January 30, 2011
Painkiller Education
Monday, January 10, 2011
Home!
Thursday, January 6, 2011
Some days...
Some days are good, when I forget I even have an autoimmune disease. Some days are bad, and some weeks are bad, when the doctors I see all say “I can’t do anything for you.” Sometimes the treatment fails, and you have to try something new. Your hope is always changing; hope in the new treatment, hope that the specialist you’ve come to can somehow fix your eye - and my hope in God is always the there, but there are some days when it’s stronger than others. I know He knows the end of this, and I rest in the fact that there WILL be an end, but some days are just hard.
And then sometimes I just feel completely alone. I wish I had someone to go to my doctor’s appointments with, to say, “It’s okay, I’m going to support you 100%.” I want someone to sit with me during infusion treatments, to say, “Even if this doesn’t work, I still believe in you.” I want someone to physically be there for me, when I can’t and when I have weak moments in my belief.
This isn’t the same as the last time I relapsed, it’s harder. I’m away from my family. The treatment isn’t working. My eye is still swollen and I’m now having double vision. My hair is falling out - it almost scares me when I look at the shower drain and the back of my jacket.
And then there are days where, even though I planned this trip 2 months ago for a different reason, I get to fly home and spend time with my family at the time I need it the most. So that’s good. And as always...
God is good, even when my day isn’t.